Who pays for hospice?
Hospice is often a benefit available within your insurance (including Medicaid) policy. When a hospice referral occurs, the hospice agency will clarify with your insurance carrier as to hospice benefit availability. USUALLY, when hospice is chosen, ALL care (nursing, prescriptions, and equipment) is provided within the daily amount hospice is paid.
I also have private duty and respite nursing who helps with the care of my child. Can this continue with hospice and how is that paid?
This is a good question with sort of a complex answer. Concurrent care is the complicated phrase which explains the need. Hospice occurs concurrently (at the same time) as the private duty or respite nursing. The Patient Protection and Affordable Care Act enacted into law on March 23, 2010 a provision which requires all Medicaid programs to provide concurrent care for children. So, when hospice is selected, all the providers of care (the hospice agency, the equipment company, the nursing agencies) discuss what they are able to provide given the type of care needed and the associated costs. Sometimes if the cost is exorbitant, hospice may wait until the very end to provide only end of life care.
What about the cost of burial or funeral arrangements?
It is often helpful to start thinking about preplanning services. If it is too difficult for you as the parent or guardian, ask a friend or relative to help with this task. If you are receiving public assistance, most counties have burial assistance for those unable to pay. Often to contain costs, cremation is required and burial choices may be limited. You can apply for the assistance only after the death and it is important to let the funeral home that you plan to apply for county aide. If your child is very young, some have been buried at the head or foot of a relative. Also, many cemeteries have sections dedicated to babies or children.